A family from near-Llangedwyn are hoping to do "something special" by raising £500 for charity in memory of their son - who would have been 21 this month.

Daniel McHugh was born with a condition called Pseudo Trisomy 13, a rare genetic disorder for which there is no treatment or cure.

Despite being given little chance of survival by doctors, he exceeded all expectations but died on New Year's Day in 2007, aged just ten years old.

Now on what would have been his 21st year, his mother Lesley says the family are hoping to repay some of the help and kindness showed to them by Shropshire based charity Hope House during Daniel's life by raising money for the organisation in his memory.

"I wanted to do something special for his 21st birthday. He would have been only 21 once and this would be something positive we can do as a family with the help of the public," she said.

"He was given no hope when he was born, but he reached milestones throughout his short life which doctors said he would never reach.

"I have chosen Hope House Hospice for this fund raising appeal because I really don't know how myself and his brother Aaron would have got through losing him without their help and support. They have been there for us from before he died, to the time we lost him and they continue to help us even to this day if ever we need them.

"The work Hope House Hospice does is vital for children and families like mine to guide us through those difficult times, but also it's a place of happy times that you can treasure for always."

Last year Hope House Children’s Hospices supported over 700 families and provided over 3,600 hours of counselling. It currently costs over £6 million each year to provide these services and the organisation say they rely on community fundraising for the vast majority of that sum.

Lynsey Kilvert, Area Fundraiser for Hope House said it was a lovely gesture which will help to support the hospice's specialist bereavement services.

"Without the local community we simply would not exist," she said.

"Hope House will do whatever it takes to keep a family’s life going until they are ready to live it again, we cannot stop children dying but they can stop families suffering on their own. "

The family are asking anyone who wants to donate to head to their Just Giving page at https://www.justgiving.com/fundraising/lesley-mchugh1