THE family of a little girl who may only have months left to live want to grant her final wish.
Evie Alana Davies, three, was diagnosed with West Syndrome, a rare form of epilepsy, at just eight weeks old.
Doctors told her parents Linda, 38, and David, 37, an aircraft fitter at Airbus in Broughton, they had never seen a case like their daughters.
The family, from Buckley, were told she had a more than 60 per cent chance of dying before the age of 10.
But now Evie is suffering from a shrinking brain, which will shorten her life expectancy even further.
At Christmas Evie, who attends Ysgol Pen Coch in Flint, was admitted to Alder Hey Children’s Hospital in Liverpool, where she spent six weeks in intensive care.
It was then that a brain scan discovered the problem.
Mum Linda said: “Her brain is shrinking and we don’t know how long she has got left.
“Doctors have said the maximum life expectancy is two years. They don’t know why it’s shrinking and there’s no diagnosis for it. We are devastated. People get upset and I say to them ‘don’t get upset, she’s still here now. You can do your crying when she’s no longer here.’
“At the moment she’s here and we take every day as it comes.”
The family, which also includes Harrison, four, Caitlin, nine, and Nathan, 17, are soon moving to a new home in Treuddyn, complete with disabled adaptations for Evie.
Linda has written to the Make a Wish Foundation, which grants the last wishes of children with terminal or life limiting illnesses.
The charity often sends children on holidays of a lifetime, but instead Linda has requested the charity builds Evie a summer house at their new home complete with a light therapy room.
Linda said: “She just loves the light therapy. If we had a summer house with a light room in the garden, she could go and have some therapy in there.
“She could go in there and get comfy. She loves the lights, her legs and arms get dead excited.”
Evie is on a daily cocktail of medication. She still suffers up to eight seizures a day and is given oxygen at night time.
The brave little girl, who loves music, is unable to walk and talk, but can communicate with her eyes.
Linda added: “She blinks now to say yes. You can put a ball on her knee and she flips it back to you. She can do a lot of things now that she wasn’t doing before. She loves school and she loves music.
“She plays with her musical instruments and if you read her a story and you stop, she will give you a whack to get you to carry on.
“She’s got her own personality.
“Even though her brain is shrinking, she has been doing really well.”
The family is now waiting to hear from the charity to see if Evie’s wish will be granted.